Monday, March 17, 2014

aim for a cure

Happy Monday! I am so excited to share with you our new "aim for a cure" (bow and arrrow design) raglan shirt, where a portion of every sale is donated to Cystic Fibrosis. Why is CF so important to me? Well, meet my nephew Donovan...

Handsome, funny, energetic and carries a huge heart to go with his giant personality. He is now 7 years old. At 12 weeks in utero the Dr.'s discovered that my sister was a carrier of the CF gene. The Dr. wasn't concerned yet that their baby would have CF, as both parents have to be carriers --and then that still only leaves a 25% chance for baby. Well a week later my brother in law got tested and found out that he too was a carrier of the CF gene. They decided to do an amnio so that if their child did have cystic fibrosis they could begin researching the heck out of it. The test turned out positive and the researching began.

At only one day old Donovan already began taking enzymes before every feeding. Shortly after my sister and brother in law started to manually pat Donovan's back and chest to clear any mucous from building up. At 14 months old Donovan was able to fit the smallest size vest which plugged into a machine that vibrated his body. This replaced his mom and dads patting. At 2 years old he added in the nebulizer, which essentially delivers meds in the form of a mist to make inhaling easier.

At 3 years of age Donovan went into the hospital for 9 days because he was not able to fight an infection on his own. He had his first PICC line surgery to receive antibiotics through a PICC line. After this hospital stay more meds were added to his nebulizer. He currently takes albuterol, pulmozyme, and hyper saline. Donovan takes 13 enzyme pills and does 2 twenty minute breathing treatments daily. Every time he gets a cough the treatments are increased to 4 times a day.

We are blessed at how well Donovan is doing and thank the lord and Dr's for all the medical advancements. I have been wanting to design a piece of clothing that could help give back. With my sister's help we created a shirt where funds and awareness could be raised for CF. If you want to support a great cause and love the new shirt design for your kiddo (s), then we would love for you to be a part of Team Donovan too!

What is CF?
Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive systems in children and adults in the united states and worldwide. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life threatening lung infections and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food

In the 1950's, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended the life of children and adults with Cf. Many people with this disease can now expect to live in their 30s, 40s and beyond.
(wording from

Thanks in advance for your support!

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