Thursday, October 10, 2013

month :: ten

Wow this month flew by and has been a bit of a whirlwind. I can't even believe that I will soon have to decide what to do for Everly's first birthday. NO way she is going to be one soon! Does she really have to grow up?

new things this month:
-doing some "normal" crawling
-3 upper teeth poked through (5 total now) and let me tell ya, feedings are not pleasent :)
-as of yesterday little everbug can pull herself up and stand in her crib
-this month her sleeping hours changed as she decided she only wants/needs 11 hours instead of 12 hours of sleep at night

Dr. visit update:
I know I promised you all an update on her Dr. visit the other week. I am still trying to process and understand everything as I honestly didn't see this coming. After the Dr. used his big words and scientific terms (for what seemed like forever) I left there feeling confused, sad, yet grateful Everly is doing so well and optimistic that she will be just fine. The Dr. believes that Everly has a condition called neurofibromatosis type 1a. The number of cafe au lait spots and placement of them (along with a few more things) is what led the doc down this path. If you google it, wikipedia will say this:
Neurofibromatosis type I (NF-1) is a tumor disorder that is caused by the mutation of a gene on chromosome 17 that is responsible for control of cell division. NF-1 causes tumors along the nervous system. NF-1 often comes with scoliosis (curvature of the spine), learning difficulties, eye problems, and epilepsy.
Now if you go and google this please be careful of the results/pics. The most extreme cases are usually what pop up. This is what freaked me out at first until I learned more. There are many kids with neurofibromatosis that never develop any major medical conditions, and I pray that my everbug is one of them (if she does indeed have this). However, the doc is not "labeling" her with this condition quite yet. We will just continue to monitor her for now....

she loves her new found skill of "standing" and I love her cute bum bum :)

B and Everly just keep getting cuter and cuter together. I LOVE watching them interact, especially when they play peek a boo :)

dog beach with zoey girl...

my monkeys :)

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